CCFA Support Group Date Change

Dear CCFA members,

We are sorry for any inconvenience this may cause, however tonight’s Northside Hospital support group meeting has been cancelled and rescheduled for Wednesday, April 25^th.

If you are interested in attending any of our other support groups, please see below the options that are available.

We look forward to seeing you at our next meeting!

If you have any questions, feel free to contact our Regional Education and Support Manager, Mary Ball at (404) 982-0616 or mball@ccfa.org.

P.S. Don’t forget, our Take Steps walk is coming up soon on Saturday, June 9^th! We are still registering new teams, so call our Walk Manager, Grace Murphy and sign up today at (404) 982-0616 or gmurphy@ccfa.org.

Support Groups Available with CCFA:

* Emory Healthcare Support Group (Decatur area)

- The Emory Clinic, 'B' on the 5th floor in Room 5701

- Located at: 1365 Clifton Road NE, Atlanta, GA

- Next meeting is Thursday, May 10th, from 6:00 - 8:00pm

- Contact: Elizabeth White at elizabeth.m.white@emoryhealthcare.org or (404) 778-2536

______________________________________________________________

* Atlanta-Dekalb County

- We are in the process of relocating this group. Please check back with us for the new location and times.

- Contact: Darryl Nelson at darryl_nlsn@hotmail.com or (678) 296-1627

______________________________________________________________

* Atlanta-North Metro (Dunwoody/Sandy Springs area)

- Northside Hospital, Doctor's Building

- 980 Johnson Ferry Road, Ground Floor, Classroom B

- Next meetings are: April 25th, June 20th, August 15th, October 17th, and December 19th

- From 7:00 - 8:00pm

- Contact: Glenn and Danielle Amdur at amdurfamily@bellsouth.net or (770) 518-7401

_____________________________________________________________

* Atlanta-Piedmont Hospital

- Piedmont Hospital, Building 77, Classroom 5 on the M level

- 1968 Peachtree Road, Atlanta, GA

- Next meetings are: May 15th, June 19th, July 17th, August 21st, September 18th, October 16th, November 20th, and December 18th

- From 7:00 - 8:00pm

- Contact: Amy Antenen at aantenen@occupiedrenovations.com or (404) 597-8621

or Katie at orange1981@yahoo.com

_____________________________________________________________

* Atlanta-Decatur

- Greater Travelers Rest Baptist Church, HF Shepherd Multiplex

- 4650 Flat Shoals Parkway, Decatur, GA 30034

- Next meeting dates are: May 8th, June 12th, July 10th, August 14th, September 11th, October 9th, November 13th, and December 11th

- From 7:00 - 8:00pm

- Contact: Valencia Hardaway at vlhardaway@yahoo.com or (404) 219-7090

_____________________________________________________________

* Gwinnett County

- Gwinnett Resource Center

- 665 Duluth Highway, Lawrenceville, GA 30045

- Next meeting dates are: May 8th, September 11th, October 9th, November 13th, December 11th

- From 7:00 - 8:30pm

- Contact: Raysa Abreu at raysaabreu@bellsouth.net or (770) 781-2815

_____________________________________________________________

* Macon

- Medical Center of Central Georgia

- 777 Hemlock Street, West Tower, Meeting Room 1, Macon, GA 31201

- (Go to main entrance and ask the front desk to direct you to the West Tower. It is easy to find from there.)

- Next meeting dates are: May 20th, June 17th, September 16th, October 21st, November 18th, December 16th

- From 3:00 - 4:00pm

- Contact: Kelley Hague at kjhague@cox.net or (478) 737-8788

____________________________________________________________

* Douglasville

- Woodie Fite Center

- 8750 Dorris Road, Douglasville, GA

- Next meeting dates are: June 21st, September 20th, and December 13th

- From 7:00 - 8:00pm

- Contact: Mary Ball at the CCFA at mball@ccfa.org or (404) 982-0616

Take Steps Atlanta, Walking Us Closer to a Cure

You can help us in the effort to find a cure for Crohn's disease and ulcerative colitis, by registering your team TODAY with Take Steps Atlanta! The walk will be at a completely new location, the Georgia World Congress Center's International Plaza (also known as Falcons' Landing, by the Georgia Dome), on Saturday, June 9, 2012.

Signing up is easy, just follow these S T E P S:

1. Call our Georgia Chapter at (404) 982-0616, or email our Walk Manager, Grace Murphy at gmurphy@ccfa.org.

2. Ask how to register a team for the Take Steps Atlanta walk.

3. We will record your contact information, team name, team member names, and fundraising goal.

4. All that's left is for you to start spreading the word and fundraising.

Once you are registered, there are many exciting opportunities you can take advantage of. For example, our teams are renowned for coming up with the best team names, like Me and My Crohnies, Team Two-Ply, and even a team called We'd Like to Buy a Bowel. You too can be a part of this group by creating your own fun team name with IBD-related humor!

Another great thing about our walk, is Walk Day itself, with a festival-like atmosphere it is a wonderful opportunity to bring your entire family out for a nice day outdoors, a comfortable two-mile walk, games, and some snacks too.

Don't wait too long, because we are also holding a drawing for an iPad!! You have to be a registered walker or team to enter the drawing, so call or email us as soon as possible.

Keep up with us as often as you like, with our handy-dandy Take Steps Atlanta Fan Page, for all of the latest fundraising tips, walk progress, and for walk-related events like our Kickoff Party!

Spring E-newsletter

Support Group 2012 Schedule

Across the state of Georgia people with IBD, their families and friends are gathering to learn how to live with IBD. All CCFA support group meetings are casual and always free of charge. These are not your typical groups...we meet to share experiences to successfully manage IBD. Our groups are a positive place to learn, grow and have fun!

Please note: All support group listings are subject to change. Please call or email the facilitator listed for the group you wish to attend to confirm the meeting date and time.

Emory Healthcare Support Group (Decatur area)
The Emory Clinic 'B' on the 5th floor in Room 5701
1365 Clifton Road NE-Atlanta-GA

For directions and a campus map please click here:
http://www.emoryhealthcare.org/emory-university-hospital-atlanta/directions.html

*Our support group is allowed to utilize the valet parking lot in front of Clinic B for free. Click on the link above to see where this lot is in reference to the clinic.

Dates: February 9, March 8, April 12, May 10 (further dates TBD)
Time: 6-8 PM
Contact: Elizabeth White at elizabeth.m.white@emoryhealthcare.org or 404-778-2536

Atlanta-Dekalb County

*We are in the process of re-locating this group. Please stay tuned for the new location and meetings times.

Contact: Darryl Nelson at darryl_nlsn@hotmail.com or 678-296-1627

Atlanta-North Metro (Dunwoody/Sandy Springs area)
Northside Hospital, Doctor's Building
980 Johnson Ferry Road, Ground Floor, Classroom B

Dates: February 15, April 18, June 20, August 15, October 17, December 19
Time: 7-8 PM
Contact: Glenn and Danielle Amdur at amdurfamily@bellsouth.net or 770-518-7401

Atlanta-Piedmont Hospital
Piedmont Hospital, Bldg 77, Classroom 5 on the M level
1968Peachtree Road-Atlanta-GA

Dates: February 21, March 20, April 17, May 15, June 19, July 17, August 21, September 18, October 16, November 20, December 18
Time: 7-8 PM
Contact: Amy Antenen at aantenen@occupiedrenovations.com or 404-597-8621
Katie at orange1981@yahoo.com

Atlanta-Decatur
Greater Travelers Rest Baptist Church
HF Shepherd Multiplex Building
4650 Flat Shoals Parkway-Decatur-GA-30034

Dates: February 14, March 13, April 10, May 8, June 12, July 10, August 14, September 11, October 9, November 13, December 11
Time: 7-8 PM
Contact: Valencia Hardaway at vlhardaway@yahoo.com or 404-219-7090

Gwinnett County
Gwinnett Resource Center
665 Duluth Highway-Lawrenceville-GA-30045

Dates: February 14, March 13, April 10, May 8, September 11, October 9, November 13, December 11
Time: 7-8:30PM
Contact: Raysa Abreu at raysaabreu@bellsouth.net or 770-781-2815

Macon
Medical Center of Central Georgia
777 Hemlock Street-West Tower-Meeting Room 1-Macon-GA-31201
(Go to main entrance and ask the front desk to direct you to the West Tower. It is easy to find from there).

Dates: February 19, April 15, May 20, June 17, September 16, October 21, November 18, December 16
Time: 3-4 PM
Contact: Kelley Hague at kjhague@cox.net or 478-737-8788

Douglasville
Woodie Fite Center
8750 Dorris Road-Douglasville-GA
Dates: March 15, June 21, September 20, December 13
Time: 7-8 PM
Contact: Mary Ball at the CCFA at mball@ccfa.org or 404-982-0616

New E-Card Contest on Facebook!

Would you like your design to be included on CCFA's new E-Cards to send to family and friends? Then create a design and join our contest!

The Crohn's and Colitis Foundation of America is running an E-Card contest on Facebook to find the best E-Card design to use this winter!

You can submit your E-Card, or vote for a friend's design from Tuesday, Nov. 1 until Wednesday, Nov. 30, 2011. The top three designs will be chosen by votes from the public, and the final winners will be announced on Monday, Dec. 5.



To submit your design:

1. Visit our National Facebook Fan Page
2. Click "Like", at the top of the page
3. Click "Holiday E-Card Contest" on the left-hand side menu
4. Click "Enter to Win", and send us your E-Card design!


To vote for designs:

1. Visit our National Facebook Fan Page
2. Click "Like", at the top of the page
3. Click "Holiday E-Card Contest" on the left-hand side menu
4. Click "View and Vote", to view the E-Cards and vote for your favorite!


We can't wait to see your beautiful cards this holiday season!

Macon Patient Education Program-November 30, 2011

Educational Program on Treatments for Inflammatory Bowel Diseases

An interactive event for patients, families, and caregivers in Macon, GA on November 30, 2011.

The Crohn’s & Colitis Foundation of America invites patients, families, and caregivers living with Crohn’s disease and ulcerative colitis to the educational program Treatment Approaches in IBD: Options to Consider. Consisting of a live and interactive presentation by Dr. Shahriar Sedghi as well as a question-and-answer session, the program will be held in the auditorium in the West Tower at the Medical Center of Central Georgia on November 30, 2011 at 7 PM.

Register today at http://online.ccfa.org/site/Calendar?id=115841&view=Detail or call Mary Ball, Regional Education and Support Manager at 404-982-0616.

Crohn’s disease and ulcerative colitis are chronic digestive disorders of the intestines. These illnesses are collectively known as inflammatory bowel diseases, or IBD, because many of their symptoms and complications are similar. It is estimated that 1.4 million Americans suffer from IBD, with approximately 30,000 new cases diagnosed each year.

This program will address the following topics:

· Similarities and differences between Crohn’s disease and ulcerative colitis
· Risks and benefits of medication, surgery, and integrative treatments in IBD
· Impact of treatment adherence on disease management and quality of life
· Talking with your health care team about your treatment plan

This educational program is supported by an educational grant from Janssen Biotech, Inc.

Columbus Education Program-October 25,2011

Join us for the Columbus Patient Education Program!
Tuesday, October 25, 2011
Check-in from 6:00-6:30 pm
Presentation from 6:30-7:30 pm

Hosted by the Crohn's and Colitis Foundation of America
at the Columbus Regional Conference Center at The Medical Center
710 Center Street-Columbus-GA-31901

"Nutrition and Diet for Crohn's disease and ulcerative colitis: Choices for adults and kids"
Presented by: Beth K. Arnold, M.A.,R.D., L.D., specializing in IBD

*There will be sandwiches and refreshments provided for all registered participants.

PLEASE CLICK HERE TO REGISTER ONLINE.

For more information about this program please contact Mary Ball at the CCFA at mball@ccfa.org or (404)982-0616.

This program is free of charge thanks to our supporters: Salix Pharmaceuticals, Janssen Biotech and Prometheus Therapuetics and Diagnostics

Take Steps Walk 2011

Take Steps, CCFA’s largest fundraising event nation-wide, is a non-competitive walk that takes place multiple times per year. Participants raise funds and awareness to prepare for the walk, and to make noise and be heard about the steps taken towards a cure for Crohn’s disease and ulcerative colitis.

The next Take Steps event taking place in Georgia will be in Savannah, with the Kickoff Party on Wednesday, August 3, 2011 at Grayson Stadium, at the Savannah Sand Gnats vs. Augusta Green Jackets game. The Kickoff Party will start at 6:00 p.m., and admission is $7 per person.

The Take Steps Savannah walk will be held on Sunday, October 30, 2011 at Daffin Park, with registration open at 2:00 p.m., and the walk starting at 3:00 p.m. The Honored Hero for the walk is Elizabeth Sevier, and there will also be music, and a Kids’ Corral with crafts and games for your children. Additional last-minute attendees are welcome, with a donation to CCFA at registration.

Also coming soon is the Macon Take Steps walk, a new addition to the Georgia chapter calendar of events, taking place on Sunday, October 2, 2011.

To sign up or for more information, visit http://www.cctakesteps/savannah , or http://www.cctakesteps.org. You’re also welcome to email our Walk Manager Grace Murphy, at gmurphy@ccfa.org, or call our office at (404) 982-0616.

Anjali Shroff, B.S.
Kristopher Lewis, M.D., Assistant Professor of Radiology, MCG
Clarence Joe, D.M.D., M.D., F.A.C.R.
Sateesh R. Prakash, M.D., SGS Research and Educational Institute, LLC

Radiologic Imaging in Inflammatory Bowel Disease (IBD)
Crohn’s disease (CD) and ulcerative colitis (UC), collectively known as inflammatory bowel disease, are increasingly prevalent in the United States with an estimated incidence of 400 patients per 100,000 individuals.1 In addition to the endoscopic evaluation and clinical symptoms, radiologic evaluation is an important component to the diagnosis and management of IBD.2


Various imaging studies are utilized by physicians in treating CD and UC. Plain radiographs, computerized tomography (CT scans), and magnetic resonance imaging (MRI) are a few examples of such studies. In evaluating which method to use, doctors must take into account the patient’s age, possible complications associated with imaging, financial cost, radiation exposure, and availability of tests. Older methods of imaging include radiographs which can evaluate for complications of disease such as obstruction and amount of stool, though they are not used for diagnosis of IBD. CT scans are increasingly utilized in the acute setting to evaluate for complications of IBD which include small bowel obstructions, abscesses, and perforations.1 Relatively newer techniques such as CT enterography, which uses a CT scanner with oral contrast for imaging, and MR enterography, which uses magnetic resonance imaging, have been shown to be successful in assisting with the diagnosis of IBD particularly the extent of involvement including fistulization, perianal disease and small bowel involvment. MR enterography is specifically more desirable due to its lack of radiation and increased accuracy.1 However increased costs and lack of availability are drawbacks to MR enterography. MR and CT enteroclysis are techniques that employ contrast administered through a nasojejunal tube in order to distend bowel. MR enterography is more commonly used in children due to the specialized skill needed and lack of availability of MR enteroclysis.1 CT enteroclysis is usually better suited for acute situations such as obstruction or abscess. To assess for perirectal abscesses or fistulas, literature has shown MRI to be the best imaging modality to determine presence, type, location, and associated findings of fistulas.1


Traditionally, small bowel follow-through (SBFT), which is an xray of the bowel after ingestion of contrast, or enteroclysis, a fluoroscopic evaluation of the small intestine, were used as a gold standard to evaluate bowel disease.3 Drawbacks to SBFT include the high radiation dose, poor imaging of the bowel causing difficulty in evaluation of the disease, and inability to evaluate disease spread outside the bowel.1 Recently, video capsule endoscopy (VCE) and double-balloon endoscopy (DBE) have allowed for more diagnostic techniques to fully evaluate bowel disease and the extent of CD. VCE involves swallowing a small capsule containing a camera which takes pictures of the bowel.3 One of the limitations of using a capsule is capsule retention resulting from a stricture or other obstructive process in the bowel lumen.4 In addition to visualizing the entire small bowel, DBE allows for biopsies and therapeutic intervention.3


In order to evaluate all layers of the bowel, other imaging techniques such as ultrasound (US), CT scans, or MRI may be used. For US, the patient is usually required to fast for 4 hours or overnight, depending on the situation.3 Using Doppler US also allows for evaluation of vessels that supply the bowel.3 Other findings on US that can help identify IBD include deep abscesses, ulcers, fistulas, and changes to the bowel wall.3 The stratification pattern of the bowel wall is an important feature of distinguishing CD from UC since it is variable with CD.3 Some disadvantages of using US to detect IBD is that certain parts of the small bowel, such as the duodenum, jejunum, rectum, and sigmoid colon, are not clearly visualized, the extent of disease cannot be fully evaluated, sensitivity is low for detection of superficial mucosal disease,4 and small abnormalities may not necessarily be detected.3 However, if an imaging technique is required, US is a good initial imaging option since it is inexpensive and easily conducted.3
For a CT scan, patients are usually asked to fast for a few hours and oral and intravenous (IV) contrast is used.3 As with US, IBD is diagnosed by thickening of the bowel wall of greater than 3 mm. With IV contrast, an increase in enhancement with CT imaging of the bowel wall, especially throughout all the layers, can also suggest IBD.2 One disadvantage of the CT scan is significant radiation exposure.
For MRI, depending on the facility, fasting or bowel cleansing methods are used prior to the exam. The bowel must be distended with contrast to fully elucidate any pathology. An advantage of MRI is the lack of radiation exposure.3 With MRI, a thickened bowel wall (>3mm) is used to diagnose IBD as well as enhancement of the bowel wall.3 MRI is very sensitive in detecting fistulas, abscesses, and enlarged lymph nodes.1 Some disadvantages of MRI include the prolonged imaging time and the possible necessity of medications to slow gut motility for improved imaging.
IBD in the pediatric population usually presents more extensively and severely.2 Due to the possibility of vitamin malabsorption and subsequent growth retardation, diagnostic accuracy in this population is essential.2 MRI can be used to help detect strictures, disease through all layers of the bowel, and other pathology in children since there is no radiation exposure.4 Radiation with fluoroscopy and CT studies is a concern, especially in the pediatric population, hence other studies such as MRI, US, or capsule endoscopy are preferred.2 In emergencies, CT is still a useful tool for rapid imaging in children and to evaluate complications of IBD.4


Overall, it is important to discuss radiographic tests with your doctor to identify the appropriate tests in the management of your IBD.

1. Pediatr Radiol. 2009: 39(2): 149-152. Imaging choices in inflammatory bowel disease. Anupindi SA, Darge K.

2. Dig Dis. 2009: 27: 269-277. Inflammatory Bowel Diseases: Controversies in the Use of Diagnostic Procedures. Vucelic B.

3. Abdominal Imaging. 2008 July: 33: 407-416. Detection of inflammatory bowel disease: diagnostic performance of cross-sectional imaging modalities. Horsthius K, Stokkers PC, Stoker J.

4. Pediatr Radiol. 2008: 38 (3): 512-517. Imaging of inflammatory bowel disease. How? Hiorns, MP.

Join us for the 2nd annual Bottoms Up for Crohn's & Colitis event!

Please join us for the 2nd annual Bottoms Up for Crohn’s & Colitis event on Saturday, August 20th at CosmoLava in midtown. Bottoms Up is the Georgia chapter of the Crohn's & Colitis Foundation's newest fundraiser that specifically targets a younger generation of charity-minded attendees.

Ticket price includes hors d'oeuvres, four drink tickets, silent auction, music and dancing at Atlanta's "Ultimate Midtown Experience"...CosmoLava!

For event info and tickets, visit www.bottomsupforccfa.org. For additional questions, contact Amy Suiter at 404-982-0616 or asuiter@ccfa.org.

All proceeds benefit the Crohn's & Colitis Foundation of America, Georgia Chapter.

Free Stress Management Workshop

Free Stress Management Workshops

Where: Cohen Chiropractic Centre2140 Peachtree Rd NW, Suite 203Atlanta GA 30309

Speaker: Dr. Austin Cohen

Directions: http://www.cohenchiropracticcentre.com/

Main Line: 404-355-5499

May 17th - 6:30 - 7:30 PM - Stress: The Silent Killer (This workshop we willtalk about all of the Physical, Chemical, and Emotional stresses that happento the body. From there we discuss the human physiology and the processesthat happen to the human body. This leads us to the effects that happen whenthe body is chronically under stress and we talk about not treating theeffects but actually correcting the Cause. The Cause lies in the following 3workshops where we will tackle the Physical Stresses such as exercise andposture, then to Chemical Stress which will focus mostly on nutrition, andfinally to Emotional Stress which will be very motivational and be all aboutcreating an abundant life through positive thinking, goal setting, andaffirmations.

July 19th - 6:30 - 7:30 PM - Balancing Your Physical Stress

September 20th - 6:30 - 7:30 PM - Balancing Your Chemical Stress (thisworkshop includes a shopping trip to Whole Foods!)

November 15th - 6:30 - 7:30 PM - Balancing Your Emotional Stress

For more information please contact Mary Ball at the Crohn's and Colitis Foundation at 404-982-0616 or mball@ccfa.org

Health Prevention in IBD: Vaccinations

Health Prevention in Inflammatory Bowel Disease: Vaccinations
Nichole McCollum, B.S.1 , Sateesh R. Prakash, M.D.2,3

Mercer University School of Medicine1, SGS Research and Educational Institute2, and Medical College of Georiga3

Vaccinations play an important role in preventing illnesses. Inflammatory bowel disease (IBD) patients, including patients with Crohn’s Disease and Ulcerative Colitis, may be at increased risk for infection when compared to the general population. Reasons for the increased risk include underlying disease, malnutrition, surgery or immunosuppressive therapy. 1

In recent years many patients have benefitted from treatment with immunomodulators (Azothiopurine or 6-Murcaptopurine) and biologic therapy (anti-TNF therapy including Humira, Remicade, and Cimzia). While these newer therapies have improved disease activity, decreased frequency of hospitalizations and improved quality of life for IBD patients, they are associated with increased susceptibility to acquiring and fighting off various illnesses. 2 The degree of susceptibility is related to the degree of immunosuppression accompanied with the IBD patient’s treatment regime. 1 As more physicians and patients become aware of the increased risk of infection associated with IBD therapies, increased efforts and resources are utilized to vaccinate IBD patients for preventable illnesses. 2 Unfortunately, many worry that an IBD patient’s immune response will not be adequate because of immunosuppressive therapy.3 It is imperative that IBD patients stay up to date on immunizations to avoid common and preventable illnesses.

Recommended Vaccines for IBD Patient

In general, IBD patients should follow the recommended vaccine schedule for adults with the exception of patients on anti-TNF or biologic therapy. These patients should not receive any live virus vaccines which include Influenza inhaled (LAIV), Mumps-Measles-Rubella (MMR), Varicella, and Zoster vaccines. Other live virus vaccines less commonly administered in the United States include Typhoid (oral) and Yellow Fever vaccines. A live virus vaccine contains “living” virus that is used to produce immunity, usually without causing illness.

Patients on anti-TNF therapy should avoid live virus vaccines due to the increased risk of causing illness.3 In addition to the regular vaccine schedule for adults in the United States, it is recommended that IBD patients receive a few extra vaccines3. Studies have shown that women with IBD have a higher incidence of abnormal PAP smears than the general population. The increased risk for HPV infection and abnormal PAP smears may be greater in women on immunosuppressive therapy4. Thus, in addition to all females age 9-26 years old receiving the HPV vaccine, females with IBD older than 26 years of age who are negative for HPV should be considered as well. Furthermore there is an increased incidence in anal cancer with perianal Crohn’s disease and males should be considered for vaccination against HPV5. However, individuals with IBD should discuss these vaccinations with his or her health care provider. Pneumococcal infections and influenza are two common adult vaccine preventable diseases. All IBD patients should be up to date on their pneumococcal and influenza vaccinations.3 Pneumococcal vaccines are given earlier in IBD patients compared to the general population5. Vaccination with pneumococcal polysaccharide vaccine and inactivated influenza vaccine is safe and well tolerated by all patients. These vaccines may be administered simultaneously. 2 Adults with IBD who are not on anti-TNF therapy and have no reliable history of varicella illness or vaccination should be vaccinated for varicella.3 Physicians and patients should recognize the importance of live virus vaccinations PRIOR to beginning anti-TNF or biologic therapy. Mortality rates are typically much higher in adults who experience varicella compared to children with the same disease. For this reason alone, effort should be made to ensure every adult IBD patient is immune to varicella.2

The recommended vaccines for adults in the United States are listed below6:

-Tetanus, diphtheria, pertussis (Td/Tdap): Adults receive a one-time Tdap booster, then Td booster every 10 years thereafter

-Human Pailloma virus (HPV): 3 doses administered to females ages 9-26 years old

-Influenza: one dose annually

-Pneumococcal: 1 dose between ages 19-26 years old then booster after 5 years

-Hepatitis A: 2 doses administered to at risk populations

-Hepatitis B: 3 doses administered to at risk populations

-Meningococcal : administered to 1st year college students, military recruits and persons traveling to endemic areas

-MMR (*live vaccine):2 doses between 19-49 years old for adults born after 1957 or if serology does not show immunity, female

-Varicella(*live vaccine): all adults without evidence of immunity or prior vaccination

-Zoster/Shingles(*live vaccine): all adults age 60 or older; not recommended for those who received varicella vaccine

*all live vaccines are contraindicated for patients on biologic therapy

Travel Vaccinations

All persons traveling to areas where Typhoid and Yellow Fever are endemic are recommended to be vaccinated prior to travel. IBD patients on biologic therapy should only receive the intramuscular Typhoid vaccine as the oral Typhoid vaccine is a live virus vaccine. IBD patients on biologic therapy should not be vaccinated for yellow fever as it is a live virus vaccine3. IBD Patients’ Immune Response to Vaccines. Studies have shown IBD patients develop an adequate immune response to vaccine, though sometimes at lower levels than the general population. Thus, it is recommended that IBD patients be vaccinated with all vaccines not contraindicated due to therapy. Some immunosuppressive medications may lessen the immune response to vaccines, specifically IBD patients receiving combination immunosuppressive therapy. This population of IBD patients may benefit from vaccine boosters1. Vaccines have not been proven to worsen clinical activity of IBD. Vaccines are typically tolerated well by the general population and the same holds true for IBD patients3. For more information about vaccinations, please consult your physician. Vaccinations should be individualized and the decision to be vaccinated should be done for the appropriate vaccine after discussion and consultation with your gastroenterologist or primary care physician.

1. Lu Y JD, Bousvaros A. Immunizations in Patients with Inflammatory Bowel Disease. Inflammatory Bowel Disease 2009;15:1417-23.

2. GY M. Vaccination Strategies for Patients with Inflammatory Bowel Disease on Immunomodulators and Biologics. Inflammatory Bowel Disease 2009;15:1410-6.

3. Sands BE. CC, Katz J, Kugathasan S, Onken J, Vitek C, Orenstein W. Guidelines for Immunizations in Patients With Inflammatory Bowel Disease. Inflammatory Bowel Disease 2004;10:677-92.

4. Kane S KB, Reddy D. Higher Incidence of Abnormal Pap Smears in Women with Inflammatory Bowel Disease. American Journal of Gastroenterology 2008;103:631-6.

5. Moscandrew M MU, Kane S. General Health Mainenance in IBD. Inflammatory Bowel Disease 2009;15:1399-408.

6. Practices ACoI. Recommended Adult Immunization Schedule: United States, 2009. Annals of Internal Medicine 2009;150:40-4.

Atlanta Patient Education Presentations 2011

Atlanta Patient Education Presentations

When: Saturday, March 26, 2011

Where: Emory Conference Center Hotel
1615 Clifton Road, Atlanta, GA 30329

Contact: For more information, please contact your Regional Education and Support Manager, Mary Ball, at mball@ccfa.org or (404) 982-0616

Presentations Listed by Speaker:

Understanding IBD

Dr. Cary Sauer

Emory University Children's Center

An Alternative Approach to IBD

Dr. Tasneem Bhatia

Atlanta Center for Holistic and Integrative Medicine

Infections, immunizations and swine flu: What every IBD patient needs to know

Dr. Athos Bousvaros

Children’s Hospital of Boston

Research Update

Dr. Josh Korzenik

Massachusetts General Hospital

IBD Medications

Dr. Bret Lashner

Cleveland Clinic

Dr. Sonia Michail

Children’s Medical Center of Dayton

Extra-intestinal manifestations: What are they and what can we do about them?
Dr. Miguel Regeuiro

University of Pittsburgh School of Medicine

2011 Take Steps for Crohn's & Colitis

Savannah, Georgia Take Steps Walk

Date and Time: May 1, 2011
Registration Start: 4:00 PM
Walk Start: 5:00 PM

Location: Daffin Park

Local Contact: Grace Murphy at gmurphy@ccfa.org or call (404) 982-0616

For more info: http://online.ccfa.org/site/TR/2011TakeStepsWalk/Chapter-Georgia?pg=entry&fr_id=2661

_______________________________________________________________

Atlanta, Georgia Take Steps Walk

Date and Time: May 15, 2011
Registration Start: 4:00 PM
Walk Start: 5:00 PM

Location: Centennial Olympic Park

Local Contact: Grace Murphy at gmurphy@ccfa.org or call (404) 982-0616

For more info: http://online.ccfa.org/site/TR/2011TakeStepsWalk/Chapter-Georgia?fr_id=2565&pg=entry

It's a time for giving: How one Atlanta company took time to Pay It Forward

A note from Mary Ball, Regional Education and Support Manager:


In an effort to introduce Atlanta-based company Skylight Financial employees to local non-profit organizations, the "Pay It Forward" program was initiated. A group of ten employees commits to creating awareness and build relationships for their assigned charity. Skyline Financial provides the team with $500 and challenge the team to turn that money into a greater donation. The team must be creative with the money and use it for supplies or materials. The team gets 4.5 hours to make a difference in the Atlanta community.

On November 10, "Team Sandals" jumped to action for the Crohn's and Colitis Foundation. They made an INCREDIBLE difference that day. The team went out in town and got local companies to donate board games, balls, arts and crafts and so much more for our Camp Oasis campers. They also created awareness for us by posting about CCFA on their blogs and radio show. Last but not least they sold 11 tickets for the Bottoms Up event! What a way to Pay It Forward! On behalf of the CCFA and everyone with Crohn's or colitis, THANK YOU SKYLINE FINANCIAL!

Skyline Financial, a NetSpend Corporation, is one of the leading providers of prepaid debit cards in the United States. For more information about the company you can visit www.skylinefinancial.com or www.netspend.com

2011 Camp Oasis dates are here!

CAMP OASIS WILL BE JULY 10-15, 2011

What is Camp Oasis?
Camp Oasis is a co-ed residential summer camp program run by the Crohn’s & Colitis Foundation of America (CCFA). Our mission is to enrich the lives of children living with Crohn's disease and ulcerative colitis by providing a safe and supportive camp community.

Where is Camp Oasis held?
Our camp is held at Camp Will-A-Way in Winder, GA. We have been running our program there since 1998. When we are not there, our host site runs 54 other camps for children with medical needs.

How old are the kids that attend Camp Oasis?
We serve campers entering second grade. Those entering 11th and 12th grade participate as part of our special Leaders in Training (LIT) Program.

What is the LIT Program?
The Leaders in Training (LIT) Program is a leadership development program for those entering 11th and 12th grade. It runs for the duration of our session, and combines the fun of camp with additional age-appropriate responsibilities and leadership building activities.

Where are the attendees from?
Our camp serves children from AL, GA, FL, TN, SC and NC.

How does the camper application process work?
The first part of the camper application should be submitted on-line at www.ccfa.org/camps. From there, applicants will receive a confirmation email along with some paper application forms that must also be completed and mailed to the Georgia Chapter by June 15, 2011 in order to be considered for attendance. Spots are not held until complete applications have been received, so we encourage you to apply early. If you do not have access to a computer, please contact us for a hard copy application.

Is there on-site medical care?
Yes! Our camp has a 24-hour on-site Health Center, staffed by physicians, nurses, and mental health professionals experienced in working with IBD patients. The Health Center is run by our Medical Director, Dr. Larry Saripkin, and Head Nurse, Melissa Sheffer, RN, WOCN. All medical care, including the distribution of camper medication, is handled through the Health Center.

Who else serves on staff?
Our camp is run by Camp Director, Jill Waddell, who works closely with the local CCFA staff to create a fun and meaningful experience for our campers. She is joined by a team of fantastic bunk counselors and activity specialists. Most of our counselors are adult volunteers with IBD, who have experience working with kids. A lot have worked at Camp Oasis before. And some have even been campers. All are carefully screened and trained to ensure a safe and comfortable setting.

What do campers do all day?
We try to ensure that every day brings opportunities to try new things, make memories with friends, and just have FUN. A typical day includes several activity periods (swimming, arts and crafts, team sports, etc.) and an Evening Activity (campfire, Talent Show, Scavenger Hunt, etc.), as well as three meals, a snack, and time to relax in the cabin.

What are the cabins and bathroom facilities like?
Campers sleep in comfortable enclosed cabins that are equipped with sanitary bathroom and shower facilities. Additional bathroom facilities are located throughout camp, so campers can easily access them at any point during the day.

Can I see what camp looks like for myself?
Yes, you can visit the website at www.camptwinlakes.org but not in person. Because of our host site’s busy schedule, we cannot accommodate on-site visits. However, you are welcome to visit their website at URL. We also have photos we’d be happy to share. Please let us know if you’re interested.

Can I volunteer on-site at camp if my child attends?
One of the most important outcomes that our campers experience is an increased sense of independence. To foster that outcome, we do not allow parents of campers to serve as camp counselors. If your camper is anxious about attending without you, please contact us. We’d be happy to provide you with some additional information that may help alleviate that anxiety. Additionally, if you are interested in helping with some pre-camps tasks around the office, please let us know.

Can I talk to my child during camp?
Due to the nature of our schedule, campers cannot receive unplanned phone calls, but letters are always welcome. We distribute them to campers daily. Additionally, you may send your child with self-addressed stamped envelopes, as there will be time each day for letter writing. If your child is anxious about being away from home without speaking with you by phone, please contact us. We’d be happy to provide you with some additional information that may help alleviate that anxiety.

Is there a fee to attend?
Yes, we ask parents to contribute a $250 to help offset part of the cost of their child’s attendance. Scholarships are available to those who qualify.

What does my child need to bring to camp?
Just the basics – active clothes and footwear, toiletries, and linens. Don’t worry. We will send you a complete packing list before camp, along with lots of other information, if your child is ultimately accepted for attendance.

What if my question hasn’t been answered here?
We are happy to answer any questions you may have, so please don’t hesitate to contact Mary Ball at the CCFA in Atlanta at 404-982-0616 or mball@ccfa.org.

General Healthcare Maintenance Fact Sheet

Click here for some easy to follow guidelines about maintaining your health.

Understanding IBD Medications and Side Effects

The CCFA has released a fantastic new brochure! If you click on this link you will find all of the information you will need about the medications prescribed for those with Crohn's disease or ulcerative colitis.

Internships available in Atlanta

Undergraduate and Graduate Internship Program
The Crohn’s and Colitis Foundation of America (CCFA) is the nation’s leading non-profit providing Crohn’s and colitis research, patient and professional education, support and advocacy. The mission of the CCFA is to cure Crohn’s disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.

Description
The Crohn’s and Colitis Foundation of America has internship positions in the Atlanta office available. The office is located at 2250 North Druid Hills Road, Suite 250, Atlanta, GA 30329. CCFA internships are unpaid, though college credits may apply.

Internships are available for Spring 2010 (January-May), Summer 2010 (May through August); Fall 2010 (August through December) and Spring 2011 (January-May).

Internship Requirements
□ Commitment to a 20 hour work week over 15 weeks (schedule is flexible)
□ Enjoy interacting with people in person and on the phone
□ Excellent writing and interpersonal communication skills
□ Ability to lift 25 pounds repeatedly
□ Experience with Microsoft Office and web-savvy
□ Ability to prioritize and handle a variety of assignments
□ Attention to detail and accountability
□ Currently enrolled as a undergraduate or graduate student

What we look for
□ Positive attitude
□ Self-motivated
□ Excellent customer service skills
□ Hard worker
□ Fast learner
□ Strong communication skills
□ Have serious interest in non-profit or community health sector

What we offer
□ Exposure to non-profit operations
□ Knowledge of available health resources
□ Experience with:
o logistical planning of grassroot community events (with post follow up)
o program planning and development for patient education
o program planning and development for camp oasis
o volunteer management and recruitment
o patient support group management
o grant writing
o implementation of marketing strategies for events
o program development and promotion for continuing medical education symposium (CME)
o program evaluation
o social marketing (facebook, blogs and twitter)
o health promotion program planning
o health policy and advocacy

How to apply

1) Internship Application Form (contact Mary Ball at mball@ccfa.org for form)
2) Resume or curriculum vitae including honors, awards, etc

After being pre-selected you will additionally need to provide:

1) Two letters of recommendation from faculty
2) Official school transcript
3) Background check through CCFA National Headquarters

Once accepted, the interns start and end dates will be determined. The intern will collaborate with the faculty advisor and Education and Support Manager on goals and objectives to be met by the end of the internship period.

Please email (preferred), fax or mail your application form and resume by the appropriate deadline:

Mary Ball, MPH
Education and Support Manager
2250 North Druid Hills Road, Suite 250
Atlanta, GA 30329
Phone: 404-982-0616
Fax: 404-982-0656
Email: mball@ccfa.org

Deadline dates:

Please contact Mary Ball for current application deadlines for 2011

Living with IBD: Blake's Story

Crohn's disease and ulcerative colitis do not discriminate and can strike anyone at any age.

Watch Blake's story to learn how one young man in Georgia is living with IBD.

Volunteer with CCFA!

At CCFA-Georgia, we always welcome volunteers to help around our office with light administrative tasks as well as volunteers to help with one of our many special events.

Please give a call 404-982-0616 if you are interested in becoming a volunteer!

Support Groups 2011 Schedule

Across the state of Georgia people with IBD, their families and friends are gathering to learn how to live with IBD. All CCFA support group meetings are casual and held in a warm, welcoming, and safe atmosphere and are always offered free of charge.

Where are our support groups and when do they meet? Keep reading to find out!

Please note: All support group listings are subject to change. Please call or email the facilitator listed for the group you wish to attend to confirm the meeting date, time, and place (or call the chapter office).

Welcome to our new group!

Emory Healthcare Support Group
The Emory Clinic 'B' on the 5th floor in Room 5701
1365 Clifton Road NE Atlanta, GA

First meeting date: December 8 from 6-8 pm
Contact: Elizabeth White at Elizabeth.M.White@emoryhealthcare.org or 404-778-2536.

For directions and a campus map please click here:http://www.emoryhealthcare.org/emory-university-hospital-atlanta/directions.html

*Remember we will be in Emory Clinic B and our support group can utilize the valet parkingin front of the clinic for free.

ATLANTA – DeKalb County
DeKalb Medical Center
2701 North Decatur Road
Auditorium (Ground Floor)
1st Wednesday of every month
7:00 pm - 8:00 PM

December 7

Facilitators:

Darryl Nelson darryl.nlsn@hotmail.com

ATLANTA – North Metro
Northside Hospital, Doctor's Building
980 Johnson Ferry Road
Ground Floor, Classroom B
Third Wednesday of every other month
7:00 pm - 8:00 PM
Facilitators:

Glen and Danielle Amdur, 770-518-7401 or amdurfamily@bellsouth.net

ATLANTA – Piedmont/Midtown
Piedmont Hospital
1968 Peachtree Road
Building 77, Classroom 5 on the "M" Level
Third Tuesday of every month

November 15, December 20
7:00 pm - 8:30 PM
Facilitators:

Amy Antenen, 404-597-8621

Katie, orange1981@yahoo.com

Atlanta-Decatur

Greater Travelers Rest Baptist Church

H.F. Shepherd Multiplex Bldg

4650 Flat Shoals Parkway

Decatur, GA 30034

2nd Tuesday of each month

7:00pm-8:00pm

November 15, December 13

*This is a ministry provided by the GTR Church

Facilitator

Valencia Hardaway vlhardaway@yahoo.com

DOUGLASVILLE
Woodie Fite Senior Center
8750 Dorris Road
Douglasville, GA 30134
December 15

6:45-8:00 PM
Facilitator:

TBD

GWINNETT COUNTY
Gwinnett Resource Center
665 Duluth Hwy, Lawrenceville, GA 30045
2nd Tuesday of each month; No meetings in June, July or August

December 13
7:00-8:30PM
Facilitator:

Raysa Abreu, 770-781-2815, ronabreu@bellsouth.net

MACON AREA
Medical Center Of Central Georgia
777 Hemlock St; Room #1
Macon, GA 31201
3rd Sunday of each month
3:00 – 4:00 PM
Facilitators:

Vicki Hunnicutt, 478-745-0495, vhunnicutt@hughes.net

SAVANNAH AREA
Savannah Jewish Education Alliance
5111 Abercorn Street
Savannah, GA 31405
NOTE: THIS GROUP IS CURRENTLY INACTIVE. NEW DATES COMING SOON!

You are invited to take the Team Challenge!

You Can: Make a change, help find cures, and walk or run 13.1 miles!

Get the ultimate tour of Las Vegas with Team Challenge, CCFA's half marathon training and fundraising program and the official charity of the Rock 'n' Roll Las Vegas Half Marathon. On December 6, start and finish on the famed Las Vegas strip, while knowing you helped CCFA get one step closer to finding a cure for inflammatory bowel diseases.Team Challenge will help you train to run or walk a marathon or half-marathon as you raise funds to find a cure for Crohn's disease and ulcerative colitis.

It's not too late to join us!

To learn more visit the Team Challenge Website.

You can also keep up to date on all Team Challenge Georgia activities by visiting our blog.

Welcome to the CCFA-Georgia Blog!

Welcome to the CCFA-Georgia Blog!

We wanted to provide the most information for you in the easiest to read format possible. Thus, our blog was born! The Georgia Chapter staff is here to help, guide and support people affected by Crohn's disease and ulcerative colitis in any possible.

We hope you enjoy our blog!

Warmly,
Marcia, Karen, Angel, Mary and Amy AKA The Georgia Chapter